Epidermolysis Bullosa Genetic Disorders Conditions and Diseases
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
Top: Health: Conditions and Diseases: Genetic Disorders
Epidermolysis Bullosa
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DebRA International
- Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research- Yahoo! Groups: EBworld - Mailing list support group for parents, patients, and conditions and diseases those interested in learning about disease.
- DebRA of America - Offers information, news, newsletters, support, and resources.
- Cristina's Castle in the Clouds - Information and support for those interested in a conditions and diseases conditions and diseases skin disorder called epidermolysis bullosa. Message board and conditions and diseases conditions and diseases also a list of camps for children with conditions and diseases conditions and diseases this disorder.
- DebRA UK - Features organization background, information about the disorder, fundraising and research details, and news.
- EB Info World - Information, mailing list, pictures, and help for new epidermolysis bullosa parents.
- DebRA Canada - Includes articles, news, and information about this genetic conditions and diseases epidermolysis bullosa disorder.
- DebRA Australia, Queensland Branch - Features disorder information, organization background, publications, photo gallery, and information conditions and diseases about the NSW branch.
- EB Medical Research Foundation - A volunteer, nonprofit foundation dedicated to the support conditions and diseases of medical research about this disorder. Includes information conditions and diseases about research, videos, and organization information.
- Jonathan's EBzone - The author shares her son Jonathan\\'s crusade and conditions and diseases epidermolysis bullosa life with Epidermolysis Bullosa (EB), a rare genetic conditions and diseases epidermolysis bullosa disorder.
- Epidermolysis Bullosa - Through the Eyes of a Patient - A young woman presents medical information, research updates, epidermolysis bullosa photographs, conditions and diseases recipes, and support group listings, as well epidermolysis bullosa as her conditions and diseases own experiences with the condition.
- International EB Forum - Includes downloadable articles and booklets as well as conditions and diseases links of interest. Also offers password-protected forums for conditions and diseases professionals.
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