Rare Disorders Conditions and Diseases Health


A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.








    Top: Health: Conditions and Diseases

Rare Disorders


See Also:
Editor's Picks:

National Organization for Rare Disorders, Inc.* - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.

  • Information Centre for Rare Diseases and Orphan Drugs - Offers an Internet portal. Includes news, forums, rare health disease and health orphan drug information and registration forms
  • Cherubs - A non-profit support group for the families and health medical care providers of children and adults health born with Congenital Diaphragmatic Hernia.
  • Fibrous Dysplasia Support Online - For those seeking support and information concerning the health rare bone diseases: fibrous dysplasia, McCune Albright Syndrome health and Cherubism.
  • Kindler Syndrome - An article and case study of this rare conditions and diseases disease. Includes links.
  • Human Growth Foundation - Information about growth-related disorders through education, research, and conditions and diseases health advocacy. Member driven organization.
  • Contact a Family - Information about this organization as well as the conditions and diseases CaF directory of specific conditions and rare disorders. conditions and diseases Also details about the Rare Disorders Alliance - conditions and diseases UK.
  • European Organisation for Rare Diseases - Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
  • Office of Rare Diseases - Information on more than 6000 rare diseases, including current rare disorders research, publications from scientific and medical journals, completed research, rare disorders ongoing studies, and patient support groups.


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