Genetic Disorders Conditions and Diseases Support Groups

National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.

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• Cornelia de Lange Syndrome (CdLS) Foundation Outreach - Family support organization which exists to ensure the early and genetic disorders accurate diagnosis of CdLS, promote research into the causes and genetic disorders manifestations of the syndrome, and help people with a diagnosis genetic disorders of CdLS, and others with similar characteristics, make infor
• Chromosome Deletion Outreach, Inc. (CDO) - Non-profit voluntary support group for families affected by support groups rare genetic disorders chromosome disorders.
• Oto-Palatal-Digital Syndrome Family Resource Network - Resources, articles, support and general information on the genetic disorders rare genetic disorders disorder, Oto-Palatal-Digital Syndrome.
• GendersInX.org - Support and encouragement for people with congenital gender variations.
• Chromosome Help-Station - Information on rare chromosomal disorders. Support and advice genetic disorders for support groups families.
• Parents of Polydactyly and Webbed Children - A support board for those parents of children genetic disorders born support groups with extra toes/fingers as well as webbing. genetic disorders A support groups place to learn new information and genetic disorders make friends with support groups others
• Forum for Patients with Myotonic Dystrophy 2 - A forum for sharing information, increasing public awareness, and building conditions and diseases advocacy for further research for patients diagnosed with Myotonic Dystrophy conditions and diseases Type 2.
• Alliance of Genetic Support Groups - National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
• Peter's Anomaly Support Group - An online support group for people dealing with genetic disorders Peter\'s genetic disorders Anomaly.
• Who is EPI ? - The mission of the European Porphyria Initiative (EPI) is to conditions and diseases present an up to date approach to the understanding of conditions and diseases porphyria.
• Thomas Scott Davidson - This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
• X-Linked Alpha Thalassemia M/R Syndrome - Features a Yahoo! group for family support for support groups individuals genetic disorders caring for others affected by "Alpha Thalassemia support groups Mental Retardation genetic disorders Syndrome (ATR-X).
• Yahoo Support Group for CMT-HMSN-HNPP - A very active support group that prides itself genetic disorders on genetic disorders helping its members through the good - genetic disorders bad days genetic disorders and posting the latest CMT/HMSN/HNPP research genetic disorders information available on genetic disorders the web.
• Trisomy 18 Moms - Lists Trisomy 18, Edwards syndrome memorial site, help making a genetic disorders website, and share a story.
• Distal Trisomy 10q Families - Support for families of children with Distal Trisomy 10q. conditions and diseases Family stories, contacts, other information.
• Trisomy 18 Support Online Community - Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
• Yahoo Groups Floating Harbor - An active support site for the parents and support groups families support groups of children with Floating Harbor Syndrome.
• Ideas - A support group for families and professionals interested genetic disorders in conditions and diseases the chromosomal condition known as isodicentric 15 genetic disorders (formerly inverted conditions and diseases duplication 15).
• Trisomy 18 Angel - This site was made in memory of our conditions and diseases support groups daughter Abigail Renee, to help other families who conditions and diseases support groups have been given a diagnosis of Trisomy 18.
• S.O.F.T. - Support Organization in the United States for Trisomy support groups 18, 13, and other related disorders. Provides literature, support groups conferences, newsletter, chapter information, and international contacts.
• Unique Rare Chromosome Disorder Support Group - Support and information for families of children with rare disorders.

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